Several days ago I wrote the above article. In the article I shared some of my thoughts surrounding what I need to keep in mind. In my experience, I have found that many “professionals” who work in the field of “helping” individuals living with brain injuries, practically patronize the individuals whom they are charged to empower.
Instead of seeking to learn from our experience, strength and hope – actually living with and succeeding – they practically dismiss, discount, minimize and marginalize who we are as brain injury survivors. It is as though they tell us to sit in the back of the bus, while they take their seats in the front of the bus. It is as though they are telling us to sit down and shut up. My question is why can we not all sit up in the front of the bus?
Instead of seeking out how they can benefit from — who we are and what we have learned through — living with brain injuries and invisible disabilities, they seek to keep us silent. It is as though these professionals see us as less than and unworthy to be heard. I do not know why this is my friend. Do they see us as a threat to their fostering dependence? I do not know why they do not see us as beacons of hope? Do they see us as a threat to their bottom line? I do not know why the do not see us as agents of empowerment? Do they see us as a threat to their agendas?
To me, this just does not make sense.
The professional community says that we as brain injury survivors are the experts, however they practically show little credence to what we have to offer to the brain injury communities recovery and rehabilitation process. I do not know why professionals serving brain injury survivors do not see the benefit and value of our experience, strength and hope in living and recovering from — which is an ongoing process – the impact and effect of living with brain injuries and invisible disabilities.
With the above in mind, I have 5 questions:
Can some one in the professional community — charged to empower and give hope to brain injury survivors – please tell me, Why Are Brain Injury Survivors being told to Sit In the Back Of the Bus?
Can some one in the professional community please tell me, Why are beacons of hope and agents of empowerment being dismissed, discounted, discredited, minimized and marginalized by the professional community?
Can anyone in the professional community please tell me, Why the professional community seeks to divide and separate us from the individuals working with in the professional community?
Can anyone in the professional community please tell me, Why are we as assigned experts, not listened to, valued or heard?
Can some one in the professional community please tell me, Why are professionals communicating — by their behavior — to brain injury survivors that we need to ride in the back of the bus?
Knowledge plus experience equals wisdom. Professional may have knowledge, but we who live with brain injuries and invisible disabilities have real life experience. Why don’t we work together?
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